I want to first say – I’m no expert at anything I’m doing. I’m just a frustrated patient looking for another alternative to being healthy once again. I’m just sharing my journey with you and hoping that this works and maybe it will help someone else someday. During this journey – I have connected with some amazing people that suffer from autoimmune diseases and I believe we can all get better together!
So my new Journey begins seeking alternative medicine and food my body can handle.
Recap of my story: This change in my life happened about a year ago, after having some issues that started to get serious (you know – when you see blood in your poop)!!! After my fun colonoscopy, I was diagnosed with UC. Now the doctor was telling me this as I’m coming out of the procedure – not sure I remember all the conversation or not. I was pretty naive at this point – had no idea what UC was – but the doctor said he was putting me on medicine and all I’m thinking is – okay, he’s putting me on some meds, we know what I have and I’m all good now! RIGHT??? Why shouldn’t I think that – anytime I had been diagnosed with anything during my life – you get meds and get well!
I really like this doctor – but education is not his strong point!!! It would have been nice, if he introduced me to the Crohns/Colitis Foundation! So I really did a little research and wasn’t finding much – but believing that I was going to be just fine…..LOL After several months of not much change, then my rollercoaster ride on Prednisone and still not responding to anything – I went and meet with my doctor once again and was way more enlightened about the treatment for UC. Seems that there is only a few drugs on the market for this disease and if they don’t work – you are headed for the heavy hitters (lots of side effects). So, we went back to Prednisone again trying a higher dose and longer time frame.
This past January/February – my doctor said I was done with Prednisone and my next step was 6MP. At this point I had done way too much research on this drug, found more information on my disease and determined that I had to find another path for myself. On my last round of Prednisone, I found remission for about a month or so (wow was it great to feel good everyday again) and then my body decided that it was relapsing once again by the end of March.
I actually had the doctor call in the prescription for the 6MP but never did pick it up. During this week of figuring out the game plan, I was really getting sick again – diarrhea out of control and I needed to do something fast. I found the website IhaveUC.com – this opened my mind to trying the Specific Carbohydrate Diet and a friend introduced me to a local Chinese doctor (Dr Brian).
The Past Three weeks of Progress:
Dr Brian started me on a “custom” brewed tea, acupuncture, warming and herbs. With my current condition (major diarrhea) we just couldn’t seem to get this under control and with the weight lose of 19 pounds on 2/3 weeks – we finally decided that I needed to try Prednisone one more time to allow everything to kick in! Once on the Prednisone, things started to improve and we have been seeing results each week.
I’m just about done with my tea (thank goodness – it’s awful) – I’m going three times a week for acupuncture, we have tried about 3 to 4 different herb/pills to see which ones are working best for me and finally think we found the right one. I have developed a great appreciation for Chinese medicine and Dr Brian – I feel I have someone that really cares about my health and getting me well (he even prays for me). This is a slow process, we are so used to Western Medicine being a quick fix – that the process with Chinese medicine is a slow healing – herbs are natural and not as powerful and take time to work. This is an expensive process as well, no insurance coverage for this alternative medicine, but I believe it’s worth every dime for me!
I can’t say that I have stuck with the Specific Carbohydrate Diet – I am a Carboholic and I just can’t live without them. I’m trying to be much better and eat way less carbs (the bad ones) eating as healthy as possible. With my diarrhea under control, I have been able to reintroduce a lot more foods back to my diet – more veggies and a little fruit. I bought a Juicer and have been juicing daily for about a week now (only about 6 to 8 oz) keeping it low for now (don’t want to loosen me up again) LOL
I have about three more weeks on the Prednisone (you have to taper off this stuff) and this will be the true test to see how I’m really doing once I’m off this stuff. I’m hoping that the Prednisone has allowed the herbs to do their healing and my body to respond to them. I’m feeling pretty good right now and have a lot of faith in my direction. I’m sure this is not for everyone – but may be another direction to seek before taking a drug that could do you more harm.
The internet seems to have more and more available once you find one site, I seem to find another. Check out www.ihaveuc.com – get the book Specific Carbohydrate Diet and there are several websites for recipes – check out the Colitis/Crohn’s Foundation website. I found a lot of information on all these sites which set my mind in the direction of alternative medicine – I will post a follow-up as soon as I’m off the Prednisone to see the true story of my improvement – I’m praying that this is working, because I sure don’t want to take 6MP or any of the other drugs recommended for Colitis!!!
I do hope that this information helps someone out there dealing with UC or something similar and thanks for joining me on this journey!!!
Blessings to you all,
Jenn – your fellow UC’er
P.S. – If you are in the Orange County area and want Dr Brian’s information, email me and I will forward!!!